Blogging it Out: Making People Aware of Rheumatoid Disease

Rheumatoid arthritis awareness day

Here at Crescendo Bioscience, every day is Rheumatoid Awareness Day. It’s part of who we are. But it’s extra-special for us when we are able to make others aware of RA and the 1.3 million Americans who suffer from this condition. That’s why we were proud to support the Rheumatoid Patient Foundation’s efforts surrounding Rheumatoid Awareness Day.

To show our support, we asked our Crescendo Bioscience Ambassadors to share their perspective about things they would like others to know about RA. Their thoughts were heartfelt, and you will be inspired and encouraged when you read what they have to say. Click each Ambassador’s name to read their blogs & check out how #Rheum posts are trending on twitter!

“The most important thing I wish people knew about Rheumatoid Disease is the toll it takes on all parts of our lives.” — Elizabeth

“You sleep A LOT. You are in pain A LOT. You give up A LOT of your lifestyle… You reorganize and reset the priorities in your life… You give up who you were and attempt to accept who you have become.” – Lori

I think the most important thing for people to know, is that Rheumatoid Disease is more than just joint pain and “arthritis”. My eyes have been affected. My lungs have nodules from it. My liver [and kidneys have] nodules and cysts.” – Aimee

“Most RA patients learn to adapt and can rearrange their plans on a moment’s notice.” – Stacie

“While I am no longer able to be PIC (pilot in command) of an aircraft, I am the PIC in my life. Being positive and seeing what I can do rather than what I can’t have been key.” – Linda, who recently stopped flying airplanes.

“What I have learned living with RA, is to not be so hard on myself. Take a break when you need it and do what’s important in life…It’s ok to cry and be mad about what RA has stolen from me, but to also be grateful for the lessons I have learned from having it.” — Meredith

“I don’t let RA stop me, but we have agreed to slow down. The majority of the time, slowing down frustrates the heck out of me, but since slow is as fast as I can go, I will continue on–slow and steadily ahead.” — Steph

“It is crucial that we educate and provide basic knowledge for the general public.” – Beth

The Rheumatoid Patient Foundation (RPF) is an organization dedicated to improving the lives of people with a Rheumatoid disease. Organizing Rheumatoid Awareness Day is one way that they are fulfilling that mission. To see other ways that Crescendo Bioscience supports RPF, click this link!

Recent Posts

THE RA WARRIOR: Dispelling Myths About RA and Encouraging Joy

Those readers who are following our Vectra Voice regularly know that we are in the middle of a series sharing what happened during our Patient Ambassador meeting in Tampa. You can click here to see how we kicked off Arthritis Awareness Month, here to hear from the physician who spoke at our meeting and here to…
Read more

A Time for Awareness & #RedefiningRA

Every day is a challenge for people living with rheumatoid arthritis. That’s why we’re launching #RedefiningRA to celebrate patients who, despite the struggles associated with the condition, put it in perspective and find new ways to “do life.” The idea comes from inspirational VectraDA ambassadors such as LaRita,  Christy, and Heather, who are taking…
Read more

Living in an RA Fog

Brain Fog of RA
By Patient Ambassador Linda Kaser For 25 years, I taught preschoolers before morphing into a university setting, working with teachers in the classroom. I had a master’s degree and was working on my doctorate when I noticed my brain wasn’t kicking into gear. My thinking was muddy, slow, confused. I…
Read more

#RedefiningRA and Really Living

It’s really hard to get Carol down. A bubbly go-getter, this motorcycle-riding, belly-dancing grandmother of six works in an oil refinery by day and enjoys a rural, outdoor lifestyle with family in her leisure hours. But in 2004 she was a little off her game. She had been in a…
Read more

Newsletter Signup

Order Vectra Test